Posted 2/28/17 (Tue)
This is the first of two parts.
By Cecile Wehrman
A book set for release next week will give a worldwide audience a glimpse of what life has been like for a Tioga family with a genetic mutation causing early onset Alzheimer’s disease.
“The Inheritance: A Family on the Front Lines of the Battle Against Alzheimer’s Disease,” by Niki Kapsambelis, tells the story of the DeMoe family, which has lost members of three generations to Alzheimer’s, typically, before age 60.
Karla DeMoe Hornstein is the only one of Galen and Gail DeMoe’s six children who escaped the mutation. Karla’s grandmother, dad, one brother and a sister have all died of the disease, along with several more extended family members. Another of Karla’s brothers, Doug, is in the late stages of the disease and is a resident of Tioga Long Term Care.
“You can still get a smile out of him,” said Karla, who fears any minor illness could precipitate Doug’s final decline.